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Potential side effects are the biggie here. While plenty of people take Topamax for its intended purpose and have no issues, others have pretty major ones. Weight Loss. United States. Type keyword s to search. Today's Top Stories. Vegan In-N-Out Burgers. So off to the neuro I go, and just started on Gabapentin.


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I feel weird, symptoms ramp up a bit as usual when we try a new med or increase dosages. If I do discover down the road that Gaba looses its efficacy, I may try a Topamax trial again. So many of us here, have had great success if they can just stick it out for a while! My only concern is this - I will not be able to work.

Anyway thanks for the inspiration. Surely your doc would try the medication and see what happens? I am on Inderal now and all good pretty much. Further, he said that Topamax works very slowly, and the positive benefits may not be seen for as long as three months or more.

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Thanks so much zoology. Your post really is one of the best. Thank you! Any advice? I am new to this site and posting things in general, but I am so consumed by this illness. I have been dealing with constant MAV for about 5 months now. I cannot drive, had to take a medical leave from work, and heavily rely on my wonderful husband to take care of me and our five children.

I have tried several different meds, with topamax being my current one.

Five Inspiring Weight Loss Success Stories

I have been taking varying doses of topamax for about a month and a half. My doc actually has me stepping down now. As frustrated as I am, that is a huge improvement. It is still not enough to get back to work and have my life back. Any suggestions are greatly appreciated. Having said that, it seems like that drug helps a lot of people, if they can tolerate it.

Some go up to mg, so I wonder how high you have gone up.

I am struggling for about 10 months non-stop, now, myself and am trialling another drug. I know how it feels, hang in there. I initially started on a tapering dose of 25mg and worked my way up to 50 mg twice a day over 4 weeks. I just had my dosage increased to 75mg twice a day. I treat with a neuro-opthomalogist at an academic medical center. My symptoms started 3 years ago as vertigo and were misdiagnosed by an ENT.

Some People Are Taking Topamax For Weight Loss—But Is That Really A Good Idea?

I basically have a sensitive brain - lights, crowds, noise, busy patterns, eye tracking issues… I was so bad last year I thought I would have to stop working. The first week on Topomax was awful.


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  • I had bad headaches which is unusual for me, but that subsided and it literally gave me my life back! All the best to you. Zoo- Thanks so much for posting this success story! By the time I had been on it for a month, I was down to and still not hungry. The results seem to last. However, two years after I got off of it I went back on it because of my binge eating disorder and it was horrible. This time I had side effects I was losing feeling in my hands and feet. My face would go numb. And it started to impact my memory. I almost immediately went off of it. If you have a schedule that requires you to be awake and aware for a good amount of the day I would avoid taking this stuff.

    This med is royally screwing up my ability to get to my morning classes. MRI shows I have a brain lesion not sure at this point if I actually had a stroke. I started on a low dose of 25mg twice daily which increased to a maximum dose of mg twice daily. I got side effects of brain fog and forgetfulness, mainly with word recollection. I also felt tired quite often. The main side effect was my lack of appetite though. I was already quite slim, around lbs but went down to lbs. I just had no appetite or interest in food. After a 2 year break from topiramate I am now on a daily mg dose again and the weight loss side effect has returned.

    No change in anything. I see my doctor on Monday. I also need to be able to maintain my weight loss. I recommend with caution, be aware of the side effects. Rather than my body adapting to the side effects, the side effects seemed to intensify until I finally called my doctor to say I was not taking them anymore.

    What is Topamax (Topiramate)?

    Chronic, burningly sore throat. Terrible insomnia, and I have severe sleep apnea so this doesn't help. At first my face was just hotter than usual I also have rosacea , and my hands were ice cold. By Day 12, my skin was hot all over, but when I'd take my temperature, my internal temperature would be normal. Plus fatigue that had me laying down most of the time.

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    During that day period, where I normally lose pounds and work out times for 30 minutes or more, I lost 1 pound and barely worked out 3 times for minutes. After stopping topiramate, I felt noticeably better within 16 hours of my last dose, but it still took another couple of days to completely get it out of my system. The side affects are dry mouth and confusion I sure hope they go away, but I will deal with them. It worked for weight loss and helped me with panic attacks and sleep.